It has been a very busy 5 months. We have been to numerous doctors appointments, transitioned into daycare/preschool, went on a family vacation, and learned we have a dare devil, busy two year old son!
Kalyn has been diagnosed with bilateral Amyoplasia of the upper arms and shoulders - a form of Arthrogryposis (internally rotated shoulders). We are looking forward to connecting with the Shriners Hospital in Philadelphia who specialize in treatment and therapy of Amyoplasia. You can read more about Arthrogryposis at http://www.shrinershospitalsforchildren.org/news/ArthrogryposisDay
June 30th was Arthrogryposis Awareness Day - Wear Blue!
We learn something new everyday about how we can help teach Kalyn that tge challenge of lifting his arms doesn't have to slow him down. (BECAUSE IT DOESN'T) We work as a family to teach him ways to stretch, strengthen, and use his arms and shoulders. We are proud of his ability to adapt.
In summary...
When we met Kalyn in February he could not reach his arms up at all...Then we got him to press the elevator button on day 2....Then we lifted balloons into a basket on day 4...He started pulling his pants up on day 74...We sought out occupational therapy and received it for the first time on day 96...Kalyn lifted his arm on his own to plug his nose swimming on day 153...Kalyn lifted his arm to feed himself without assistance on day 154...time is precious....love is overflowing....the possibilities of a healthy happy normal life are endless!
#godisamazing
#onelessorphan
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